baxtr 1 day ago

Now imagine DOGE team of experts cutting this a couple of years ago

2
0_____0 1 day ago

Here's the thing - likely few would have noticed. We are structurally blind to the places in which public investment would have made our lives better, especially when they are things like scientific research that the vast majority never think about until it produces results.

bilekas 1 day ago

I didn't want to bring up specifics but I'd be lying if it wasn't on my mind.

munificent 1 day ago

I mean, the article is explicitly written to put it on your mind:

"The implications of the treatment go far beyond treating KJ, said Dr. Peter Marks, who was the Food and Drug Administration official overseeing gene-therapy regulation until he recently resigned over disagreements with Robert F. Kennedy Jr., the secretary of health and human services."

"But KJ’s treatment — which built on decades of federally funded research"

"The result “is a triumph for the American peoples’ investment in biomedical research,” Dr. Urnov said."

"The researchers emphasized the role government funding played in the development."

"The work, they said, began decades ago with federal funding for basic research on bacterial immune systems. That led eventually, with more federal support, to the discovery of CRISPR. Federal investment in sequencing the human genome made it possible to identify KJ’s mutation. U.S. funding supported Dr. Liu’s lab and its editing discovery. A federal program to study gene editing supported Dr. Musunuru’s research. Going along in parallel was federally funded work that led to an understanding of KJ’s disease."

"“I don’t think this could have happened in any country other than the U.S.,” Dr. Urnov said."

This is an article about federal funding of medical research with a cute baby as the human interest bit.

shadowgovt 1 day ago

It would probably be good if more of us brought up specifics more often.

bilekas 1 day ago

It would be nice, but you know how politics can usually turn into a bit of a toxic environment online. That said, I personally don't see the DOGE thing as anything other than a way to reduce the power of regulatory enforcement. I'm sure someone who would want that would never be conflicted with interests there...